Guilt is an emotion you face when you parent a special needs child. A friend admired Aidan’s thoughts and said that she loved how his mind worked. I felt the complete opposite - I could not see his gifts, I was too busy managing his life. You can start to resent the time, money and compromise. Priorities shift when you have a special needs child to care for and that can undermine your relationships, with your spouse, your friends, your family.
As a couple, you both need to take turns going to appointments. I felt that I was the only one chauffeuring, until my husband reminded me that is was he who attended all the early intervention programs. You forget and you get wrapped up in your own schedule. I have learned to communicate when I need a break, and my spouse is more aware of my mood and knowing when I need a rest.
As a couple, you both need to take turns going to appointments. I felt that I was the only one chauffeuring, until my husband reminded me that is was he who attended all the early intervention programs. You forget and you get wrapped up in your own schedule. I have learned to communicate when I need a break, and my spouse is more aware of my mood and knowing when I need a rest.
You cannot let the “Autism” rule your life. It has an undeniable impact, however, if you spend each waking moment obsessed with the next book, newest treatment, latest theory, you won’t have anything to offer your child. Taking care of your own needs is critical, for any parent, special needs child or normal functioning. A happy parent, does make for a happy family - it is as simple as that.
I have Autism
I communicate differently
Sometimes I need to be reminded to focus
Sometimes I wander, so keep an eye on my at recess.
I need help getting organized for home
I need someone to escort me to my bus
Aidan, grade 4, “Things about me” assignment
